Meetings and Conferences-Genetic Testing
 

Ninth Meeting

March 27-28, 2006

Bethesda , Maryland

Agenda  

 

Minutes
Webcast March 27 webcast

March 28 webcast

Webcasts can be viewed by downloading RealOne player.
Transcripts March 27          March 28
Transcripts are in pdf format.  A free pdf reader is available here.   

 

Monday, March 27, 2006

 

 

Opening Remarks
Reed V. Tuckson, M.D.
SACGHS Chair 
   webcast       transcript 
Large Population Studies Session
Overview of Draft Report on Large Population Studies
Huntington F. Willard, Ph.D.
Chair, SACGHS Task Force on Large Population Studies
  slides         webcast        transcript
Full Committee Discussion
    webcast       transcript
Pharmacogenomics Session

Update from the Pharmacogenomics Task Force
Emily Winn-Deen, Ph.D.
Chair, SACGHS Task Force on Pharmacogenomics
  slides         webcast         transcript

FDA Draft Guidance for Industry and FDA Staff on Pharmacogenetic Tests and Genetic Tests for Heritable Markers
Steve Gutman, M.D., MBA
Director, Office of In Vitro Diagnostic Device Evaluation and Safety, FDA
  slides         webcast        transcript

Full Committee Discussion
   webcast        transcript
Public Comments
  webcast        transcript
Tuesday , March 28 , 2006
Opening  Remarks
   webcast        transcript

Genetic Discrimination Session

Survey on Public Attitudes toward Genetic Technologies and Genetic Discrimination
Ms. Christy White
Cogent Research
  slides        webcast        transcript

Q&A Session
   webcast        transcript

Update on the Status of the Genetic Information Nondiscrimination Act of 2005 (S. 306/H.R. 1227)
Sharon F. Terry, M.A.
Chair
Coalition for Genetic Fairness
  slides        webcast        transcript

Q&A and Committee Discussion
   webcast         transcript

Public Comments
   webcast        transcript

Patents and Licensing Session

Session Overview and Framing the Topic
Debra Leonard, M.D., Ph.D.
Chair, SACGHS Task Force on Patents and Access
  slides        webcast       transcript

Briefing on the Report of the National Academy of Sciences Committee on Intellectual Property Rights in Genomics and Protein Research and Innovation
David Korn, M.D.
Member, NAS Committee on Intellectual Property Rights in Genomics and Protein Research and Innovation
  slides        webcast        transcript

Q&A Session
   webcast        transcript

Perspectives of the Task Force on the NAS Report and Proposed Recommendations
Dr. Leonard
  slides        webcast        transcript

Full Committee Discussion
   webcast       transcript

Planning for June 2006 SACGHS Meeting and Concluding Remarks

  webcast     transcript

ADJOURN

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Page Updated : 11/16/2006